No More Hiding

Today I didn’t try to hide my processor.

Though I have not intentionally hiding it, I have been tucking it under my hair when ever possible.

When I got done at the gym today, I re did my hair and was getting frustrated with it. I finally put it on top of my hair and continued to get ready. It was not until that moment that I realized that I was indeed “hiding” the fact that I had a CI.

It took me some time to figure out why I would do this. I have never hid my hearing aids or been ashamed of them. At least tell that very moment I didn’t think so.

We all go through life wanting to be liked and accepted. Society has a standard of what is cool and what isn’t. Not once have I seen a model with a CI. Or a commercial with someone who is Deaf. I think maybe because I could get by as hearing before all of this is what is effecting me. Before the big hearing loss of 2015 I could get by as a hearing person. No one knew I had bilateral hearing aids.

Since then it has been more challenging. Now more than ever I have needed help re learning how to hear. This is different. I never meant to hide my CI but deep down I think I did. I dont want people to look at me different. I dont want people to freak out because I have a magnet on my head. You would think that after 32 years you would get over this fear of wanting to be accepted.

My goal for this year was to move forward and face my fears. Today I am facing my fears and showing off my CI. No more hiding in fear. Maybe I can help a young girl who has a CI be more confident, maybe I can help a parent that has a child with a CI know it will be ok, maybe I can spark a conversation with a stranger who is genuinely curious. Hiding prevents opportunities from finding you.

Be Brave.

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New Sounds New Possibilities

It has been three days since I have had my Cochlear activated and I have to say I am shocked to how I am reacting. If you remember just a few months ago I was overcome with stress, negativity, and worry regarding this choice. I was fully expecting to cry or be depressed when activated, instead, I smiled.

That day was a crazy one. I was doing really good with just one ear and felt like I could survive if I hated the CI. Chris had his Tough Mudder that day so we were outside in the heat all day, rushing to get home to shower, eat, and get to my appointment. We got there on time, and only then did I start to get anxious. Something about being in that waiting room, I couldn’t stop pacing. My audiologist fully prepared me for possible reactions. She said most people cry, they get really overwhelmed,, they get disappointed or sad.  She went on for several min explaining how I may not like it. In my mind I started to think “it really cant be that bad”. But I stopped my self mid thought and said I am going to be different. My audiologist gave me a count down and 3 … 2 …1… Sound.

It was a lot of noise at first. Sounded like feed back from a hearing aid. My audiologist kept talking, giving me examples of what people say it sounds like when first activated. Some were right on the dot others were a little far fetched. After the initial blast of feedback I started to hear a Alvin the Chipmunk on Helium (not just Alvin but Alvin on Helium) voices. It was not that bad. I new this was what it was going to sound like. This was one of the biggest reasons I didn’t want a Cochlear. This was my biggest objection. But because I was expecting it, it wasn’t so bad as it was made out to be. The next nerve racking moment was what was Chris, my Fiance, my Best Friend, was going to sound like. He handed my audiologist the phone to record my reaction. 3…2…1… he started telling me about how we met. He told me how he fell in love with me after 3 days in High school. He sounded like him. Nothing had changed. Just a few sharp SH CH sounds but he was still him! I was so excited. My Audiologist covered her face and said some colors. I could get most of them. Turquoise was the only one I didn’t get. Chris called me from another room once we set up my  Bluetooth.  He said some colors and stumped me at Aqua Marine. My Audiologist was very impressed and excited for how well I was responding. After my appointment, Chris and I experimented with new sounds the rest of the day. Crinkling paper, dropping pens, clapping, dog tags jingling, all sorts of stuff. My favorite sounds from that day are kisses and crinkling paper.

The next day I put my CI on and it was a long time before the feedback buzzing sound subsided. They say this is my nerves just reacting to being stimulated. Because they are not used to it they freak out and cannot make since of what is happening. Eventually it subsided and voices sounded more robotic less chipmunk. We had apples for breakfast and OMG that is a weird sound. I have heard this sound before but imagine it sounding like the crispest apple you have ever had in your life with every bite! My sister got me one of those kid toys where you point the arrow at an animal and you pull the lever to make the sound. HA that was interesting. Mice and rabbits apparently make some interesting sounds. I listened to some A Capella music through my CI. I could pick out songs I new but not one I didnt know. Towards the end of the day my head ached from the magnet but all was well.

Today is my first day back at work. I am trying not to wear my Hearing Aid and rely just on my CI. I brought it just in case I needed to have a important work conversation. My office is very open and we have concrete floors. I felt like I was yelling.  I couldn’t quite get my pitch right. I could hear everyone’s steps. People sound like the dog from the move UP,  (Alpha) when his voice processor breaks. It is quite entertaining! I put my Hearing Aid on for a one on one meeting with my boss and I felt like my hearing aid was plugged. It didnt sound like it used to. It is so weird. Every day, every situation, every moment is different. My brain is trying to make sense of it all. I am so excited I want to expose every sound to it! However, I dont know how much or little I should do.

I have so many questions, so many possibilities, so many opportunities for success!

I new this would be a good thing for me but I never expected to be so excited to re train my brain to hear! I didn’t expect me to be so optimistic!

Thank you to everyone for their support, advice, and recommendations!

I am so excited to document this adventure!

 

 

It is always impossible until it is done. – Nelson Mandela

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I did it.

I got Cochlear Implant Surgery.

It is officially the path I am taking right now. There is no turning back.

You would think that this would be the end of my stress. You would think the hard part/decision is over. But it is just beginning.

I severely underestimated the down time I would need for this surgery. The day after surgery I was up and about. I walked the dogs, I went grocery shopping. Sure I had minor pressure and pain but nothing to stay home about. However, the third day I was rocked. Dizzy spells, numb metallic tongue, mad sinus pressure headaches. All which are getting better but not gone yet, 5 days later.

The  real struggle is my mind. I keep thinking that this is going to be permanent. I keep thinking I will have this metallic taste in my mouth forever. Which could be a possibility. I keep freaking out about this being my new normal. However, I am only 5 days out of surgery where they implanted a foreign object into my skull.  My body is like WTF and it is  trying to protect itself. Knowing this, I still keep going down the wrong path mentally.

I cannot control if they hit my nerve while in surgery, I cannot physically change the outcome of this issue. I cannot control how my body is reacting to this foreign object. The only thing I have control over is my mind, and I am struggling to get that right.

I keep going between the two extremes, completely over the top positive and optimistic (almost unrealistic), to end of my world dramatic negative. My in between is closer to the the negative side. I keep listening to podcast on how to control the mind and training the mind to get through things. None are sticking. David Goggins says to write it out until you understand it, then don’t go back down the path of not knowing. Total hard ass, just do it attitude. This works for about 10 min. Another author says to recognize the worry for what it is, dont be afraid of the facts, and have confidence that it will get better. Way to sugar coated to be effective in my case. I am terrified of the facts.

Then I opened my inspirational Quote of the day email and it said this ” The only way of finding the limits of the possible is by going beyond them into the impossible” – Arthur C. Clarke.

“It is always impossible until it is done” – Nelson Mandela

For what ever reason, these quotes are giving me the push to be positive. These quotes, these unspecific, vague, optimistic quotes, are giving me hope. I am a free spirit, it is hard for me to be bogged down by facts. I need the option to overcome facts, I need to believe that even though it may not have happened before, it could happen to me.

When I was writing down what I wanted (per David Goggins) I wrote this

“I am going to be in the 70%. I am being healed 100%. My hearing is intact and all of my nerves are healing and functioning properly. ”

This is my miracle. This is my possible. This is what is going to happen. It is going to happen because I am choosing for it to happen. I am at the point in my mind where it is becoming debilitatingly negative. This is the time that I need to push past that governor (like in a car) in my mind, and keep going. I need to dream big. I need to believe it is happening. I need to know that it COULD happen. What if it does get better attitude.

You never know until you try, and to try completely you have to believe.

Wish me luck.

How to Let it Go to the Universe

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The Law of Attraction states that we need to Ask for what we want, Believe we have it, and then we will Receive it. They say to start small with a parking spot, or a cup of coffee. But what I want is more than that. I know I can have it. I truly believe that the universe can bring it to me. However, I need to be 100% in line to receive it. Staying in that frequency is not easy.

Every morning I wake up and my hearing is different. Sometimes better, sometimes worse. When it is worse it get nervous, angry, and frustrated. It dictates my attitude for that day. It is very hard to get me out of that mind set. I know that if I don’t change my mind set and get on that frequency the universe is not going to bring me what I want. Knowing this I get more frustrated at myself and it is a downhill spiral.

I am trying to utilize the visualization process. I visualize myself sitting in the hearing booth taking my test. The audiologist comes out and looks shocked. She gets the Dr and he re gives me the test. Shocked as well he comes in to tell me that my hearing is normal. Like 100% in the normal range. I try to feel how excited and emotionally overwhelmed I would be. I try and feel the relief, disbelief, amazement, and excitement I would feel. I have printed out a audio-gram, on that I want my hearing to look like. I look at it at work every day. I imagine the ear piercings I would get if I didnt have hearing aids. I believe this miracle can happen.

Every day that I wake up without hearing , I feel like I push myself farther and farther away from my miracle. I have a hard time asking, believing, and letting it go to the universe. You rely on your hearing every day. Because it causes so much frustration and struggle when you cannot hear, I am constantly reminded that the universe has not delivered my miracle to me.

I dont know the answer. I dont know how it will happen. Practice makes perfect I guess.

I will get my hearing back.

It is a big wish but size doesn’t matter to the universe.

Ask.

Believe.

Receive.

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It has been some time since I have sat down and wrote. I have missed it. I have missed poring my thoughts  on to this page. I have missed the community of people that comment and notice my work. However, I have become much more positive since you have last heard from me.

” Life is not all sunshine and daisy’s”

Life sucks. There is no sugar coating it. I have learned that over the past two years that I have taken the bad, lived in it, and forgotten the good. There was a post on facebook the other day, I wish I had saved it, it was about energy. How we are beings made of energy. Energy is neither good or bad, but it is what we make it to be. I am reading a book series called Darker shades of Magic. (It is like a grown up Harry Potter) It talks about how magic is neither good nor bad, it simply is. It is how you use it that determines its form.

Between the  quote and the book it really clicked for me. I ma energy, what ever I feed it (good or bad) is what it survives on. I have been feeding on bad energy. It showed. You can see it in my post. But I have decided to stir up the positive magic in me and change that. I have control.

Stay tuned to hear more from me soon. The world has not taken the magic from me yet!

 

Ignorance is Bliss


I sit here on a Saturday night watching Braveheart with the love of my life, and I am so greatful to just BE in this moment. I have so many things in my life that could be, or might be, it is nice to just not know for a moment. 

I have a lump on my arm that I got MRI ed today, I won’t know the results tell my dr calls me. I have breast pain like never before and am paranoid I have pumps, I have an appointment next week. I hate my job, but I might have another one lined up. All these things are in limbo. All these things scare me. All these things I don’t know right now. 

And that is ok. I almost don’t want to know. I want to live my life blissfully with no answers. Day by day moment by moment. 

I have two healthy playful dogs. An  extroardanry boyfriend who loves me more than I could ever imagine being loved. I have a roof over my head, food in my stomach, and money in my bank account. I am blessed. 

I have, in this moment, everything! I almost want to keep it that way. 

Thank you thank you thank you!