No More Hiding

Today I didn’t try to hide my processor.

Though I have not intentionally hiding it, I have been tucking it under my hair when ever possible.

When I got done at the gym today, I re did my hair and was getting frustrated with it. I finally put it on top of my hair and continued to get ready. It was not until that moment that I realized that I was indeed “hiding” the fact that I had a CI.

It took me some time to figure out why I would do this. I have never hid my hearing aids or been ashamed of them. At least tell that very moment I didn’t think so.

We all go through life wanting to be liked and accepted. Society has a standard of what is cool and what isn’t. Not once have I seen a model with a CI. Or a commercial with someone who is Deaf. I think maybe because I could get by as hearing before all of this is what is effecting me. Before the big hearing loss of 2015 I could get by as a hearing person. No one knew I had bilateral hearing aids.

Since then it has been more challenging. Now more than ever I have needed help re learning how to hear. This is different. I never meant to hide my CI but deep down I think I did. I dont want people to look at me different. I dont want people to freak out because I have a magnet on my head. You would think that after 32 years you would get over this fear of wanting to be accepted.

My goal for this year was to move forward and face my fears. Today I am facing my fears and showing off my CI. No more hiding in fear. Maybe I can help a young girl who has a CI be more confident, maybe I can help a parent that has a child with a CI know it will be ok, maybe I can spark a conversation with a stranger who is genuinely curious. Hiding prevents opportunities from finding you.

Be Brave.

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Second Mapping: Finding the X

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Today I had my second mapping for my CI and it was amazing. The past week has been exhausting. Every day people sound different and I hear new things. Between robots and chipmunks, I cant help but giggle at my own voice.

Today though. Today was different. The past week I downloaded a audio book. I was told that if you listen to the book and read it at the same time as you listen, you can determine better what sounds you are not hearing or processing correctly. To my surprise, I was not getting “W” sounds. I would read the word “world” but through the audio book it would be something completely different.

I told my audiologist and she said my mid frequencies were too low. Through some minor adjustments in the mid tones and I am a whole new women. It still sounds robotic and or chipmunk like, but I can distinguish so many more sounds. It is mind blowing the difference that made! Then they put me in the sound booth.

If you remember from before Single Word Repetition in my left ear with a hearing aid I could only get 30% of the words correct. Sentence Repetition was 80%. Today we did only sentence repetition with just my CI and I got 98%!!!!!!!! I only missed 3 words out of 135! I am BEAMING!

Now I know that I am very good at using context to put things together but this is still really huge! I am so glad I listed to the advice of my peers (sister especially) for the audio book and all the amazing support they have given me!

This journey is just beginning and I am already so excited for all the  future holds! I know all journeys  have rough patches but I am so ready to overcome anything that comes my way! Bring on that treasure!

When You are Wondering Why

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Do you ever have those days were you just scream “why me!”? Do you ever just get so angry at who ever you believe is responsible, and say “if you are all powerful why would you do this? Why would we have wars? Why would you allow this to happen?”

Well I hope to ask the big boss that someday, but for now, you just have to believe that it is happening for a reason. I know I know easier said than done. Trust me I am not here to say it is easy. I f***ing sucks. Take my life for example: my debt has increased substantially in the past two years. So much so that I believe the stress of money is causing my medical problems. Ever since we went to Buffalo we have been in a downward spiral. When we moved back we were so excited to get started on saving and fixing everything that went wrong. Only to find that it was about to get worse.

When are are living in the worst it is hard to see any way out. You are angry and wonder what you ever did to deserve this. Well a week after my little pity party, me and my boyfriend start a financial peace class. The teacher talks a lot about relationships with money and how money effects our personal relationships. 80% of divorce is because of money issues. Now if we didn’t go through what we did in Buffalo, and what we are going through now, we would have never gone through this class.  We would have been 40 years old, divorced, and in the 80% statistic. This class is helping us better communicate about money and in turn helping us grow. Is it worth all the pain… I will let you know when I am 40.

Stuff happens. You cannot plan for all of it. You can however, learn how to properly deal with it. For us in our life money is our #1 stresser. Yes we have medical stuff happening but guess what, we cant control that. I cannot control my hearing. I cannot control how strong my dogs ACLs are. I cannot control the lumps growing in my body.  BUT I can save and prepare to take care of them though.

I am in troubled water but my enemies are sinking. I am learning how to sail my ship. I am learning how to adjust my sails to get me to where I want to go.

I may not know why but I am learning a lot along the way.

Have faith.

It sucks. You will have days. But never give up.

Never give in.

When Life gives you Damn Lemons

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We all have days where we want to give up, when the clouds come in, when the lemons keep coming. Well, yesterday was one of those days. I cried, and cried hard.  I kept sobbing “I am so sick of these f***ing lemons!” I cried before and after my workout in my car, for a good half hour. I know what it is like to give up and I know it is not easier, though at the time it always feels like it. I had to keep reminding myself of this. I had to keep reminding myself that it can always be worse. I had to keep reminding myself that I have a plan in place. I had to keep telling myself that I am strong enough. It was a continuous battle.

These lemons are just distractions that keep us from moving forward. Even when I feel like giving up (like yesterday), I told myself to just cry for a bit, take a moment to feel this. Lets face it, life sucks. It really sucks. It is OK to feel sorry for yourself. It is OK to have pity party, because you know what, no one else is going to feel bad for you! Cry it out! Yell! Scream! Growl!  Just be sure to pick up some salt and tequila when you are done.

Put your big kid pants on, take a seat, and do some shots (figure of speech). We cannot control everything in life but we can control how we react to it. Crying is normal, it is an act of strength. But we cannot stay at your pity party. We HAVE to move forward.

I get it. Trust me. It is not easy. I cannot change my hearing. It is not getting better. It is effecting EVERYTHING in my life. I cannot even get laser hair removal (TMI), that I have wanted for a long time,  because of the meds that are supposedly supposed to give me my hearing back. It is effecting my relationships with my friends because I am too suborn to ask them to repeat things more than twice. It is effecting my job because I cannot hear in the conference room. It is effecting my ability to make friends at the gym (my only social interaction) because I cannot wear my hearing aids at the gym. It is effecting my relationship with my hunny because I am angry all the time. So I try to not be angry and that stresses me out, creating more anxiety. To top it off I have other medical problems, along with two other surgeries for my pup!

Trust, me I get it.

I have my fair share of Lemons, and I am sick of F***ing lemonade. But I have my little pity party, cry it out, then I put on my  big kid pants. I grab some tequila and salt and say Bring IT! 

Stop – Look – Listen

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In light of the New Year, I want to talk about resolutions. Not the same old ” I am going to loose weight”, “I am going save money”, resolutions. I am talking about the life changing resolutions. The HOLY SHIT resolutions.

Life sucks. It is hard. None of us come out alive. So why do we go through ever year saying ” I will start Monday” or “Maybe next year”. If I have learned anything this year it is that tomorrow is not promised.

Do it all today.

When my boyfriend asked me what my resolution was for this year I told him that I want to do more things that scare me. When I got my motorcycle license in 2010 I was terrified. Everyone told me I couldn’t do it. I wasn’t coordinated enough. I wasn’t strong enough. I did it though. I have my licence and it was the most liberating experience of my life so far. I want more of these moments. I want more of these smiles. I want more of this confidence.  It was contagious. It was exhilarating. It was the best high of my life.

We are responsible for all of our life choices, and because of those choices we are where we are. I am not where I want to be because I have not taken any risks. I have not made any scary choices. I have not jumped off the deep end and tried something that scared me so much that I may just have to grow from it. I have played it safe.

I have learned that I am afraid. I am afraid of getting sick (like cancer sick), I am afraid of not making the right choice, I am afraid of what people will think of me. And I make my choices based on these feelings. These feelings of fear and uncertainty.  I look back on last year. All the suffering, all the medical bills, all the unknowns, all the debt. I see nothing but fear and disappointment. I dont want to look back next year, hell I dont want to look back at tomorrow and feel this way.

I am not going to make any more broken promises to myself. If I want it, I need to go after it. I am going to do things that scare me. Guess what? I am going to survive them with flying colors, just like I have survived the fear and sorrow. The difference is…. I am going to be better for it. I am going to smile, I am going to laugh, I am going to thrive.

 

Change the world one day at a time.

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“Stress is caused by being here but wanting to be there, or being in the present but wanting to be in the future. It is the split that tears you apart inside.” – Eckhart Tolle

Last night I sat down and realized how stressed I really was. I just got done with a killer work out and should have been relaxed and wiped out, but all I could feel was the tension in my neck and shoulders and the anxiety building in my throat. There was no reason for my body to be reacting this way. I worked out, I ate well, my job is not hard, I don’t have to pay rent, I have a loving boyfriend at home for me. Nothing major to be freaking out about.

When I got home I had to sit down and really think to get my self to calm down. Just then I realized (or decided to acknowledge) that I have been living my life worrying about the future. I believe this is #1 reason I am so stressed out. I want to buy a home, but don’t have the money. I want to get married, but I am afraid to make the wrong choice. I want to retire someday, but my job now does not offer 401K. I want my hearing to come back, but that may not happen. I want this bump on my arm taken off, but that cost money I don’t have. I want to get my dog his surgery, but that also cost money. All these things are in the future and I cannot do anything about them today.

Our bodies have a funny way of telling us when to just shut up and listen.

I ran across this quote about not mastering all of  your life in just one day late last night.  And I came to the realization (or decided to acknowledge) that I only have control of what is in front of me right now. I need to work on mastering today first. Once today is mastered, things may start falling into place. I then made a list of all the things I have been stressing about and what I have done to get them fixed.

  • I have been talking with a lender about buying a home (home buying is a lengthy process).
  • I am in love with my boyfriend that is all I need right now.
  • I am saving money by staying with my mom, that helps with saving for retirement.
  • Called the Vet regarding a possible payment plan for my pups surgery.
  • I made a Dr. appointment for my arm, that is step one in getting a cost for my surgery.
  • I am on meds for me hearing, and praying for a miracle.

WHAT MORE CAN I DO

I need to keep remembering this. I have done all I can do. I am in the process of getting these things done. I have a plan. Lets now focus on today. I keep looking at the big picture and I am missing all the fine little details. Its like going to Florence Italy and forgetting to go to see the Statue of David.  Yes you have been there but did you see all its glory. I am here today yes, but am I living in all its glory.

Lets master they day.

 

Can you remember who you were before the world told you who you should be? ~Danielle LaPorte

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I came across this quote the other day and I cannot stop thinking about it. I have never really thought that I was a person that let the opinions of others direct my life. However, the more I thought about, the more I realized that it is all I do.

My mom and I fight all the time. She accuses me of things I don’t do all the time. Naturally I get very offended because all I do is try to please her. I will never be good enough in her eyes. My dad hates my boyfriend (because he reminds him of him at his age) and it hurts me to the core that I cannot show him how great he is. My sister is perfect and has a great job, a home, a husband who makes a ton of money. My brother is an engineer, and all I do is compare myself and my life to theirs.

This is part of the reason I wanted to move to New York. To find me. Not be judged. That didn’t work out the way we planned, but we learned may other things.

If I stop blaming my mother, father, and my successful siblings, and really think about this question I found an answer.

Before I was what the world made me, I was an artist. I was creative. I loved to paint, and build. I loved putting things together and making things. I wanted to be an Architect.

Why did that change?

Mom told me that artist didn’t make much money. Dad said all the money was in real estate. Society said artist are hippies and broke. People said being a architect is hard.

So I stopped. I did everything but what I wanted to do. I had 5 majors in college. I am not doing anything with my actual major. I have gone back to school twice for two different degrees and have not finished them. Why? Because it got hard. Because I had no support. Because I wanted to go out and do other things besides homework.

So what now?

Do I get back on track? Do I go become an architect? Do I finish those degrees I haven’t finished then go back to school.

Some people say you just know when you are doing what you are meant to do. I have always wondered how they “just know”. How do they go from being completely miserable in there every day life to just knowing what is the right path. How do they see past all the anger and annoyances. How do they get past all the bad moods and bad days. How do they know when to jump ship.

I guess that is why it is called faith.

You don’t know.

You just try, and try again, tell you find it.

Well…That sucks.